Familial Hypercholesterolaemia Project Launch Event

18/10/2018 12:30 pm @ Hardwick Hall Hotel

Event Details

A programme of work to implement targeted Familial Hypercholesterolaemia (FH) risk assessment and medication review at a Primary Care level across the region has been established by the AHSN NENC, working in collaboration with Clinical Commissioning Groups, GP Practices, PRIMIS, AMGEN and Sanofi.


We are delighted to announce that Professor Huon Gray MD FRCP FESC FACC, National Clinical Director for Heart Disease for NHS England will be speaking at the event. 

Keynote Speaker – Professor Huon Gray

Huon was appointed consultant adult and interventional cardiologist to Southampton University Hospital in 1989. He was President of the British Cardiac Society (2003-2005) and co-chaired the Department. of Health’s National Infarct Angioplasty Project (2006-2008) which led to the subsequent roll out of primary PCI for ST elevation myocardial infarction.  He was clinical adviser to NICE on acute coronary syndromes (2007-2010), and chaired its guideline on ST elevation myocardial infarction (2011-2013). He chaired the International Council of the American College of Cardiology (2008-2013) and sat on the ACC’s Board of Trustees (2012-2016).

Huon is honorary professor at Queen Mary’s University, and University College, London, and has published on various aspects of cardiology and health service delivery. He was Deputy and then Interim National Clinical Director for Heart Disease at the Department of Health (2007-2012).

Event Aims

The aim of this event is to launch the project in the south of the region and is aimed at GPs and Practice Managers.

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12:30-13:30 Registration, lunch and networking


Professor Julia Newton

Medical Director



Overview of the event and why we are here

Dr Peter Carey

Consultant in Diabetes and Endocrinology

Sunderland Royal Hospital


Familial Hypercholesterolaemia: A National Overview

Professor Huon H Gray MD FRCP FESC MACC

National Clinical Director for Heart Disease

NHS England


The Value of FH Genetic diagnosis and Cascade Testing Services

Dr Dermot Neely BSc MD FRCP FRCPath

Consultant in Clinical Biochemistry and Metabolic Medicine and former Chair,  Northern Lipid Specialists Advisory Group

The Newcastle upon Tyne Hospitals NHS Foundation Trust

15:15-15:30 Refreshment Break

FH in the North East – The Story so far

Dr Guy Pilkington – Assistant Chair NHS Newcastle Gateshead CCG

Dr Jonathan Smith – Clinical Chair of DDES CCG


The Role of the FH Nurse

Susan Musson and Lorna Ingoe

Familial Hypercholesterolaemia Nurse Specialists

Familial Hypercholesterolaemia Service

Institute of Genetic Medicine, International Centre for Life


Summary and Close

Dr Peter Carey

Consultant in Diabetes and Endocrinology

Sunderland Royal Hospital

FH Project

This joint working project will enable the identification of patients at high risk of FH and will facilitate the evaluation of medications and educate and treat patients with the sole aim of eliminating the excess coronary heart disease risk and premature mortality associated with FH. Through better patient identification, the utilisation of the genetic screening programme across the AHSN footprint will increase. This will improve the patient experience by providing more specialist care within primary care and ensure better utilisation and more appropriate referrals to the specialist service base with the NHS Trust.

The Partners aim to develop an exemplar model of care for the effective identification and management of patients who may be at risk of having FH, or high cardiovascular risk, which will initially be embedded across the AHSN NENC geographical area and scaled up nationally.

Come along to hear more about this project and share with other colleagues who you think may be interested.